tag:blogger.com,1999:blog-8581317431133132518.post2910793889576703061..comments2023-07-25T06:31:22.641-05:00Comments on Jude; The diary of a baby and a stroke: updateJennifer Ortizhttp://www.blogger.com/profile/14350225247489608653noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8581317431133132518.post-25545704895016756272010-04-13T22:41:25.641-05:002010-04-13T22:41:25.641-05:00I do know that IS can become a different form of e...I do know that IS can become a different form of epilepsy over time. Happened to a friend of mine although her son is older. <br /><br />I'm with Bronx--consult the neuro for that paperwork. There's no way that ped understands what it's like to have a child that's contantly in danger of seizing.Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-63149858997908783512010-04-13T07:38:39.114-05:002010-04-13T07:38:39.114-05:00Crap....where is our seizures suck blog, Jenn? We ...Crap....where is our seizures suck blog, Jenn? We gotta do one! Poor Jude. I can kind of relate to how you feel about Jude out in public but Faith is not as involved as Jude so I know it must be harder. I know several families whose children are more like Jude and I hear them say the same thing. I know one mom who started a support group in our area (her son was about 10 at the time) but she NEVER brought him to any of the support groups. She left him at home most of the time with respite or family members.Candacehttps://www.blogger.com/profile/04201448627487443779noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-18522288010161973782010-04-13T07:26:15.493-05:002010-04-13T07:26:15.493-05:00um, yeah. i think i'd have the neuro complete...um, yeah. i think i'd have the neuro complete the "packet." they can be more specific with the seizure stuff, and would be the ones writing orders for the nurse anyway. <br /><br />sorry about the increase in seizures. i'm surprised your neurologist isn't changing meds if the increase isn't showing improvement. i know how frustrating that can be. ugh. <br /><br />hope today is a little better.jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-11668858361925991602010-04-12T22:42:04.883-05:002010-04-12T22:42:04.883-05:00i would want to know why he/she signed off that Ju...i would want to know why he/she signed off that Jude doesn't need it. Ask your Neuro if they would take over the paper work for services. Thats who does all our paperwork.<br />GerBronx Cataldo'shttps://www.blogger.com/profile/00690890704919059565noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-37289119853065734322010-04-12T22:13:32.366-05:002010-04-12T22:13:32.366-05:00hi jen,
i haven’t stopped over in a bit so i thoug...hi jen,<br />i haven’t stopped over in a bit so i thought i would so so and say “hi” and see how life in your part of blogesphere is… jude is getting so big and such a cutie! how is emily's smile box stuff coming along? i know how the seizures can be problematic and when a glass of wine just doesn't seem to be enough... keep the faith.. and i'm here if you need a shoulder... been there done that!<br />shelley :)shelleyhttps://www.blogger.com/profile/05136693344253527464noreply@blogger.com