tag:blogger.com,1999:blog-8581317431133132518.post8684544944481076113..comments2023-07-25T06:31:22.641-05:00Comments on Jude; The diary of a baby and a stroke: Many needed realizations.Jennifer Ortizhttp://www.blogger.com/profile/14350225247489608653noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8581317431133132518.post-22478236017721142762011-06-30T16:59:33.953-05:002011-06-30T16:59:33.953-05:00I feel the same way. Although I am just starting ...I feel the same way. Although I am just starting my journey with Claire, I harbor so many worries about the future. Like you, I just wish things could be easier for her in this world. This was not the life I wanted for her, not the life I worked for, not the life I planned. It is so painful knowing that no matter what I do, I can't change her condition.Brad and Amyhttps://www.blogger.com/profile/12404603430111579863noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-46820302140831874022011-06-27T07:20:12.973-05:002011-06-27T07:20:12.973-05:00Thank you for saying all those things that many of...Thank you for saying all those things that many of us with children with special needs want to say. I live in Southlake and would love to meet you jlieck@sbcglobal.netJacolynhttps://www.blogger.com/profile/14966291460929695590noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-89443973925978680972011-06-22T14:39:06.396-05:002011-06-22T14:39:06.396-05:00I can't say I understand either, but I do pray...I can't say I understand either, but I do pray for you and your family. I love you, girl.Kimhttps://www.blogger.com/profile/05080184899107558884noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-30783036462833120312011-06-21T09:02:13.678-05:002011-06-21T09:02:13.678-05:00Big hugs and prayers.Big hugs and prayers.Pamnoreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-46914497338758685772011-06-20T22:04:34.895-05:002011-06-20T22:04:34.895-05:00There is no way I can possibly understand, but I c...There is no way I can possibly understand, but I can say, "You are in our prayers." God bless.Warren Baldwinhttps://www.blogger.com/profile/17956713921509659993noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-50232317747467297732011-06-20T03:16:58.465-05:002011-06-20T03:16:58.465-05:00I have also found myself feeling the same way late...I have also found myself feeling the same way lately. I love my daughter very much, but life is just easier at home. I wish things could be easier for her in this world. When we travel, we have to load and unload her chair, which is difficult. I just do not have the funds to get a lift presently. We love the beach, but that too can be a challenge.I would give anything to see her run and play like the other children, not for me, but for her. The equipment we need is so expensive. I constantly worry about who would take care of Ashley if, God forbid, something happened to me. Our home is also our safe place. I only have very few family members who even try to understand our circumstances, or reach out to us in any way. Most people do not feel comfortable watching her for me because they are afraid she will have a seizure with them. The long and short of it is, as you said, people just don't get it. I have had many years of traumatic events with Ashley's medical issues, all of which were when she was smaller. I, too, realize we have alot to be thankful for. Most days I do OK, but lately I find I worry more about things out of my control. I just want Ashley to be happy and healthy. I also want people to see her for the sweet, intelligent child she really is instead of focusing on her "disabilities." My brother, who is a doctor, doesn't even try to talk to Ashley. My mother does not help me at all. My dad was wonderful with Ashley. He loved her very much and watched her for me every chance he could. Sadly, my dad passed away a few yars ago from cancer. Like you, I also work alot. I know how it feels to just be tired. Sorry this is so long, just know you are not alone.Kim C.noreply@blogger.com