tag:blogger.com,1999:blog-8581317431133132518.post3801088444639673427..comments2023-07-25T06:31:22.641-05:00Comments on Jude; The diary of a baby and a stroke: someone fix the roller coasterJennifer Ortizhttp://www.blogger.com/profile/14350225247489608653noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8581317431133132518.post-10415672819220885012009-08-20T16:48:15.661-05:002009-08-20T16:48:15.661-05:00WOW, thanks so much everyone for all the wonderful...WOW, thanks so much everyone for all the wonderful advice!Jennifer Ortizhttps://www.blogger.com/profile/14350225247489608653noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-9328703656080399222009-08-20T16:45:57.817-05:002009-08-20T16:45:57.817-05:00Jenn,
HUGS to you and the whole family! You might ...Jenn,<br />HUGS to you and the whole family! You might also check into Resource Just for Kids. We get it through our med. supply co. but I have been seeing commercials for it on tv like you can find it at walmart. It's a red box of formula that is like Pediasure but has even more cals per oz. Ped. has 30 and Resource has 45. We use this for Faith to keep her weight up b/c she is so sensitive to volume. We can feed her 30oz and get 1350 cals down her compared to Ped. we had to do 45 which is ALOT! We can then substitute juice to keep her hydrated better. Just a thought.Candacehttps://www.blogger.com/profile/04201448627487443779noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-77992724173416983102009-08-20T14:41:07.591-05:002009-08-20T14:41:07.591-05:00I have been following your blog and today I felt I...I have been following your blog and today I felt I should post a comment. I am a mother of a 4yr old boy who had a hypoxic brain injury, has CP, had infantile spasms now tonic seizures. I know exactly how frustrated you are. When it seems like it can not get any worse it does and we think how will we get through this. You will. I remember that I worked so hard with my son to eat every day. I would spend hours and hours and all my energy for him to eat. Unfortunally my son had a swallow study and he was aspirating so we had to get a g-tube. I was devestated. I felt like I failed and I felt like it was really the only skill my son had left. But after that his health improved and i did not spend all day force feeding but rather enjoying and playing with my son. I know you do not want the tube and i really pray that this illness will pass. I do have one suggestion ,we bought a thickner and thickened his liquids. If your son eats better you might try it. You can by over the counter at a pharmacy. I will say that your life never gets stable you learn a new stable. I promise it does get easier. Warm thoughts to your family and I hope i did not upset you by talking about a g-tube.<br />jilldes@hotmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-13506973905386661142009-08-20T13:52:08.024-05:002009-08-20T13:52:08.024-05:00I really have no doubt that Jude is going to excee...I really have no doubt that Jude is going to exceed expectations--those seizures are just slowing him down. You are in the trenches--there's no other way to look at it.Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-58034740715284224432009-08-20T13:24:05.989-05:002009-08-20T13:24:05.989-05:00You are doing the best that you know how. Jude is...You are doing the best that you know how. Jude is so lucky to have a mom and dad like you and Mike fighting to do everything that is best for him. I'm sure there are some parents out there in the same situation that don't have the energy, passion or wherewithall to even begin to know what to do to get the help that their child needs. I admire you both for all you have done to enable Jude to have the good life he has. He is very lucky to have such caring parents and such an awesome big sister. You have shown me that when life gives you lemons, you know exactly how to make the lemonade! Keep the faith. In some weird way, God is rewarding you. JennPurple Quilter Queenhttps://www.blogger.com/profile/07102651020235200775noreply@blogger.comtag:blogger.com,1999:blog-8581317431133132518.post-52358387749543010942009-08-20T13:11:05.285-05:002009-08-20T13:11:05.285-05:00You are so strong. I just wish I could hug you ri...You are so strong. I just wish I could hug you right now. I am not going to say everything is going to be ok because I don't know. I am just going to pray everything starts being ok for that cutie pie! Hugs.Laura Marchanthttps://www.blogger.com/profile/07878325934353943862noreply@blogger.com