tag:blogger.com,1999:blog-8581317431133132518.post1534737101754313315..comments2023-07-25T06:31:22.641-05:00Comments on Jude; The diary of a baby and a stroke: A whole LOT of information, another procedure, and a new care team for Jude. Jennifer Ortizhttp://www.blogger.com/profile/14350225247489608653noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8581317431133132518.post-86774850296708637422014-09-04T22:14:31.826-05:002014-09-04T22:14:31.826-05:00We have had a palliative care team for years, it&#...We have had a palliative care team for years, it's very common in chronically ill kids. They just take more work, in pain management and such, you need someone to take the lead! It's been a positive thing for us (except of course when her old doctor nearly killed her by writing her methadone prescription wrong)! Here in Austin they organize care conferences with all of Reagan's doctors to get everyone on the same page (and brainstorming together). It's definitely a good thing!Reagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.com